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Kids' Docs - www.kidsdocs.com
Florida Children's Physicians & Surgeons, Inc.
P.O Box 533074
Orlando, FL 32853-3074
1-877-999-KIDS (5437)
HyFI - www.hydrocephalus.org
The Hydrocephalus Foundation, Inc.
910 Rear Broadway
Saugus, Massachusettes 01906
1-781-942-1161
Hydrocephalus Association - www.hydroassoc.org
Hydrocephalus Association Support, Education, Advocacy
870 Market Street, Suite 705
San Francisco, CA 94102
1-415-732-7040
1-415-732-7044 (fax)
SBAA - www.spinabifidaassociation.org
Spina Bifida Association of America 4590 MacArthur Boulevard, NW
Washington , DC 20007
Phone: 202-944-3285
Toll Free: 800-621-3141
Fax: 202-944-3295
ASBAH - www.asbah.org
Association for Spina Bifida and Hydrocephalus
42 Park Road
Peterborough, PE1 2UQ, England
Registered Charity No. 249338
The Child Brain Tumor Foundation - www.cbtf.org/cms
Research to Help Children
20312 Watkins Meadow Drive
Germantown, MD 20878
1-301-515-2900
Pediatric Brain Tumor Foundation of the United States -www.pbtfus.org
Aid in Early Detection and Treatment
302 Ridgefield Court
Asheville, NC 28806
1-828-665-6891
1-800-253-6530
1-828-665-6894 (fax)
CAPPS - www.cappskids.org
Craniosynostosis and Parents Support
2965-A Quarters
Quantico, VA 22134
1-877-686-CAPS (2277)
1-703-445-1078 (fax)
Dandy Walker Alliance - www.dandy-walker.org/
Dandy-Walker Alliance, Inc. 
10325 Kensington Pkwy Suite 384 
Kensington, Maryland 20895
1-877-Dandy-Walker
1-877-326-3992
Florida Hospital For Children - www.floridahospitalforchildren.com/
601 E. Rollins St. 
Orlando, FL 32803