HyFI - The Hydrocephalus Foundation, Inc.
                        910 Rear Broadway
                        Saugus, Massachusettes  01906
                       1-781-942-1161

    Hydrocephalus Association - Support, Education, Advocacy
                        870 Market Street, Suite 705
                        San Francisco, CA  94102
                        1-415-732-7040
                        1-415-732-7044 (fax)

    SBAA - Spina Bifida Association of America

    ASBAH - Association for Spina Bifida and Hydrocephalus
                        42 Park Road
                        Peterborough, PE1 2UQ, England
                        Registered Charity No. 249338

    The Child Brain Tumor Foundation - Research to Help Children
                        20312 Watkins Meadow Drive
                        Germantown, MD  20878
                        1-301-515-2900

    Pediatric Brain Tumor Foundation of the United States - Aid in Early Detection and Treatment
                        302 Ridgefield Court
                        Asheville, NC  28806
                        1-828-665-6891
                        1-800-253-6530
                        1-828-665-6894 (fax)

    CAPPS - Craniosynostosis and Parents Support
                        2965-A Quarters
                        Quantico, VA  22134
                        1-877-686-CAPS (2277)
                        1-703-445-1078 (fax)